Monthly Archives: December 2013

Aryn has just had enough.

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And maybe me too.  Today I have a pre op appointment.   I dropped Aryn off at daycare and headed out to the doc. My appointment had to be pushed back. Life happens.  But as I was sitting at home waiting a flood of texts came in from her provider.  Aryn was in the middle of a epic melt down. My stress went through the roof.  We gave it a bit and Aryn was still going strong. It breaks my heart to hear she’s just that overwhelmed.  As I raced across town to scoop her up and figure out what I was gonna do. Miss Amy called again and let me know Aryn was doing better. 
But I still feel so horrible for her.  I know her melt down has everything to do with the crazy week we had. Hell I even wanted to cry.  Lucky for me her caregiver is awesome and pretty much told me to go to my appointment then come get lil momma.  Because had it been up to me I would of went there and scooped her up and pretty much ruin my surgery by missing this appointment. 

  Gonna try my best to make the rest of her day as calm and stress free as possible.  And maybe some McDonalds chicken nuggets as a peace offering

We made it through the week… Or she has sensory issues back the fuck off

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It was the week that would never end….  Well maybe not but god it felt that way.   Some how in all the hussle and bussle of December we had managed to jam pack a week.  There hasn’t been a day this week that we’ve hit home before 8 pm. On top of that due to the weather I was having to drive my husband in to work most of the week as well.  As a parent with some one with sensory issues you can only imagine the horror I felt when I realized what I had done.   Add to that, that I myself have ADHD that to this day I have to take medication to manage it, and my older girl as well, it  was a recipe for disaster.   But Aryn believe it or not did wonderfully.  Much better then I could of ever hoped for.  She really loved taking daddy to work.  She manage for the most part to not have any major issues.  Her back to back therapy days were awesome.  Which let me tell you is helping me out a lot.  To knock out Speech and Behavioral therapy in the same day has been a god sent.

I am very proud of Aryn.  The first of two concerts we had to attend was on Tuesday.   It get’s very loud in the gym.  Something I complain about constantly, when it comes to her school.  They never have enough room and the room it’s self is just to small for a any kind of performance.  Orchestra  The one we attended on Tuesday wasn’t bad at all.  I am sure it had to do with the lack of percussionist trying to blow everyone’s ear drums out.  But still it was a little to loud for Aryn.  And instead of going into a full blown melt down she told me very calmly that it was to loud.   We sat out the rest of the concert in the hallway.  She got to see sister play so she was happy.   Today was Jayde’s band concert. Aryn did very well before hand.  Talking with the lady whom had sat next to us.  Which was awesome to see, normally people usually have to talk to her.  But she initiated the conversation herself and was actually talking with the women.   But remember how I mentioned the room being way to small.  Well Band is much bigger which ment a lot more families and parents.   I had taken Aryn into the hallway, not because she was having any issues, but because one there was a couple one of which was on crutched needed seats on the ground floor for lack of a better word, and two I knew Aryn wasn’t gonna make it this night without a few melt downs.  I made the decision it was best to go out into the hall instead of having to get out of there quick in case she did have a melt down.  I was able to rotate with another set of parents.  ( Matthew had to work and miss both concerts.)  So I we could just watch Jayde play at least one song.   And that’s where it began.

Moving through the crowd set her off.  like most parents of Aspies or ASD or SPD  There are things you do that you know are just gonna work.  For Aryn it’s sitting on the floor cross legged and holding her.  Talking to her and doing my best to calm her.   The first comment didn’t bother me so much.  Another parent made mention to how well she had been doing the other day.   After a quick explanation about how long the rest of the week was she smiled at Aryn  and that was that.   The second melt down  though.  That was something else.  I needed to put Aryn’s coat on, and all she wanted to do was get outside and away from all the commotion and of course she flipped out and threw herself on the floor.  So of course I had to grab her or risk her being trampled by all the other people trying to get out the door.  I was able to duck into the stair case and do my thing.. another parent looks at her like she’s crazy and asked me if she is okay.  I tell her that Aryn has sensory issues and she just needed a min or two to calm down.  The look I got…  I mean seriously.   Do you think I wanted to sit down on the ground while people are passing by and my poor older daughter is freezing her tush off because she’s in her dress and it’s the dead of winter here.   Of course not.  But it’s what Aryn needed in the moment so I did it.   There is a million other times I’ve had to the the same in public places and I’ll do it over and over again for her as long as she needs me too.  But It just made my blood boil.  Aryn had done so well this week and even with the two melt downs she did very very well tonight.  I didn’t want to take away from what a wonderful week she had just because she had reached her limit.   She loves hearing sister play and I will accommodate that as much as possible for her.   Normally I have my husband with me and We’re able to deal with these moments out of the public very.  But tonight I was only my own with lil Momma and a camera trying to get some shots of the concerts their daddy had to miss.

I think I am done ranting.  =D

Gonna add in a Sensory kiddo life hack here.

If your kiddo has issues with blow drying hair.  Something that is nessary during the winter months here.  Get a small heater with a fan.  sit it on a raised surface.  And there you go safe blow drying.  it does take a bit longer.  but it’s much better then having to use a blow dryer on her.   I think Aryn does so well with it because it’s been in her room since the first winter we were here.  Our house is very old and the heat doesn’t work as well as it should.   She’s used to the noise it makes.  Which might mean you’ll have to familiarize your little ones to the heater before you start trying to use it as a blow dryer.. SDP life hack

 

Coming Out……………………………….as an Aspie

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So I had to put this here, Because I feel strongly about what he is saying here.

The Asperger Boy

So this week or next week I forget, Susan Boyle came outas having Asperger syndrome, then not long after that actor Dan Ackroyd did the same thing. I have been to a few Asperger awarenesss meetings and some post diagnosis groups, one of the topics was disclosure. If and when we should be telling anyone about our diagnosis, When is the right time, best time etc.

At work over the last couple of days I have had two separate incidents where mothers of children who have ASD or Aspergers whatever you want to call it have openly announced to me and everyone else in the store that her child has the condition. The first was because her child likes to get under the counter, which many children do and she decides to tell everyone as if to make anexcuse for him. The second was a woman…

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You know you have an SPD kiddo when…

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There are a few things that you can just smile and say… yep.   We usually put the tree up pretty early.  Because honestly this is one of the busiest  and stressful times in our house.   I usually take most of December off of work for this reason. ( some times being self employed is awesome).   But back to the point. Aryn help me put the decorations on the three and over the past week I started to notice they were migrating leaving us with this.  I couldn’t help but smile.

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One of Aryn’s more Autistic behaviors is the grouping and sorting of objects.   And yes I have not plans to move them.  I am pretty sure she’d moved it back anyways.

This weekend was also Aryn’s 4th birthday.   I can’t even believe that she’s been on this earth for 4 years now.   I can say we are in a much different place then we were last year.  So much has gotten better and so much has changed.   And one of the major things that has changed was with me.  When Aryn was very very small.  I always worried that she wasn’t meant for this world, I was always fearful we would loose her.  No doubt brought on on a very late miscarriage of the girls brother the year before I got pregnant with her.  There wasn’t a day in that pregnancy that I didn’t worry we might loose her.   I can’t even tell you the last time I felt that fearful, She’s hear and she’s healthy and she’s all ours.   The future is bright and we’re moving forward to make life better for her.    I am sure my post will be limited till the new year.  It’s the holidays and we’ll have family coming in.    Enjoy your kiddos and  the magic  of the season color coordinated and all.

Christmas will be here before you know it.

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Man… really it’s almost Christmas… when did that happen?    In a one short week Aryn will be 4 years old.    I remember when she was born, Jayde our oldest who was only 10 at the time told me it wasn’t fair that she’d get birthday and Christmas gifts.   I had to explain to her the real bummer of having a December birthday, I know there are those who know my pain.  I am a January baby myself and people still forget my birthday because it’s so close to the holidays.   Still it’s crazy to think it’s been 4 years since we brought this beautiful baby girl home.

I am so very very excited for Christmas, my mother in law will be here.   She makes a trip out two times a year to see us and the girls.  Aryn was doing a lot better the last time she was here.  But now OMG I think she’ll be floored to see how much better Aryn is talking.  Even if that came with the sudden ability to whine. *hangs head*.   I could of lived without the whining I really could of.  Aryn just learned to say grandma after she had left last time.   The closer we get to her birthday and Christmas she asks me where is grandma.   Or grandma needs to come home.  To which I have to explain that grandma’s home is in California.  But still its so very cute.  I just can’t wait for grandma to hear her talk.   Plus we really love having family out for the holidays.  Being military and Matthew job being as such it’s really hard to take a vacation we only make it home about every three years.  So having family come out is the closest to home we get.   It gives us a little bit of normal in our very crazy life.  Plus it allows Matthew and I a chance to take a mini vacation when they are here.

In other news =/   Aryn has her first ear infection.   A complication from her measles a few weeks back.  Aryn has never had a ear infection in her life.  It was so very very scary how sick and how fast she got sick from it.  Even her doctor was shocked how out of it she was when I brought her in.  Even more so when he found nothing wrong but a very very minor ear infection in her right ear.   The really bad thing about this, she’s not sleeping well.   We were doing so good with sleep.   But it’s understandable, it’s hard to sleep when you’re so uncomfortable.   It’ll take time and antibiotics to kick this.   I’m praying this is an isolated indecent, because I hard horrible and recurring ear infections well into my adult years.  I was 30 the last time I had an ear infection, and has left me with some hearing loss.  We got very lucky with Jayde and hopefully Aryn will be the same.

I hope the holidays find everyone well.  And we all survive… LOL… since this can be a really hard time for our SPD kiddos.

Some really big exiciting news!

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       I want you to close your eyes and take a moment to think about what I am about to tell you.  When Aryn started Speech therapy 15 months ago, At just shy of being 3 years old, She had the vocabulary of  a 15 month old.   Just let that sink in for a bit.  Think about any 3 year old you know… and just imagine how that must be like for them as well as the people around them that love and care for them. 

     Well today Dana, Aryn’s wonderful speech therapist was able to test her  to see where she is at.  She tested 2.11, which means she’s just about at a 3 year olds level of speech.  It’s still about a year behind where she should be but she’s improved so much.  This is the same kid that just about a year ago had pretty much no ability to communicate effectively, now can hold a conversation.   Can tell you what she wants and needs.   There are still frustrations still days where she can’t find the words, but for the most part she’s light years away from that kid she was a year ago.   I always use to comment on how little she seemed because of that,  She still seemed a lil behind her peers but the gap is closing quickly.  And that makes dealing with the sensory issues a hell a lot easier.  Even her day care provider was commenting on how much  better she’s doing there.

   I am excited about the progress we’re making.  She’s eating even if it’s a limited menu… it’s still eating and most days is eating 3 meals a day.  Going to bed without milk which was a big one for us.   Sleeping most night pretty well.  Now that we’ve figured out the magic bed time, and as long as we stick with that no more late nights.  Our sensory melt downs are getting less and less.  We’re all learning to see them before they get to the point of no return and help her get pass them.  She’s learning to let us know when something is gonna be to much.    She’s healthy and happier then I’ve seen her in a long time.   And for the first time in a long time I am not so worried about her going to pre K next year.    Here she is enjoying one of her favorite things. Mickey Mouse pan cakes. Image