Tag Archives: LD

I didn’t forget about you people I swear…

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So I took a longer then exspected absence from  the blog.  If you live anywhere  around the Midwest.. or just about anywhere other then California.  you know we had a really bad winter.  Heck  it snowed to day.  Between finishing up the Nero testing and having to become every one’s taxi   I’ve had very little time to  do anything else.

 

We did manage to finish the testing the end of February.  Unfortunately we’re still in the same boat we were before.    The only thing we did manage to figure out once and for all is Aryn in no shape or form is autistic she isn’t even on the spectrum.    Which we already knew. But now it’s been confirmed.  The best they could offer us is global delays with SPD  not related to Autism. We will be meeting with them again in a few months to see how she is doing.  But the doctor was very impressed with the improvements she has made since starting Speech and Behavioral therapies.   It’s likely with this continuing she’ll get to a point will she will no longer be  behind her peers.    They said she was very bright ( duh).   Considering Matt, Jayde ( our oldest) and I are all gifted, I can’t say I was shocked at all.  I’ve always said that she’s just as smart as Jayde if  not more so she just can’t get it out.

Feeding issues have been bad lately which means sleep has been too.   There have been more then a few nights I’ve had to man the baby monitor  till she finally crashed out for the night.   I am really hopping we can get to the bottom of this feeding issue.  I fear that she’ll end up with a feeding tube or a totally liquid diet.  But there is very little I can do about it now.

The most fustrating thing about all of this.  The school district wants to redo every test we just did, so they can place her in a Pre K classroom and develop a IEP and 504 for her.  Normally I wouldn’t care so much but we just went through so much to get all this testing done to have to do it all over again with new people  makes me want to pull my hair out.  On top of that they want to take over her speech therapy.  I have a feeling this is gonna be a big fight with them.   I don’t see removing her from a doc she’s use to and have improved greatly with as a good thing.   Especially since we are very lucky to have insurance to cover that.    So I guess we’ll see how that plays out.

 

I promise next post wont be such a info dump.

The Great White Death ( the big ass snow storm)

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Now that everyone is done freezing their asses off.  We’re on the other side of one of the coldest snow storms of us have seen in our life time.  This just confirms I don’t ever want to live in Alaska. =D    Great thing was we didn’t loos power once.   We were very very worried, we have a breaker that for some reason likes to pop every time it gets cold.  I guess it got so cold it couldn’t pop.    The girls did well.  My oldest is so sick of being home.  3 week winter break isn’t as fun as it seems.  Aryn has been doing very well all things considering.   She was pretty upset about having to miss speech therapy and day care.   She asked me today if we could take  a car ride.  Which we can’t.  We’re still snowed in.     My husband has been having to work from home.  His boss was able to get him today and hopefully they will return with a snow blower.   Since i had surgery the day after x-mas I can’t shovel snow.   And trust me it kills me to have to send my husband and my oldest out into the cold to work on the 2 plus feet of snow that has collected around the house.

Her Nero appointment was pushed back to the 15th.   This is really the final step in getting her a formal diagnoses.  Once we have that we can move forward with Pre K and kindergarten with the right plans in place to help her succeed.  504’s and IEP’s are critical for success with any kid of learning disability.  My oldest had one in the very early years of her education.   While it might not be the case for everyone.  It allowed her the time to catch up on the things she was behind in.  Now she’s able to attend school without one.   When she does have issues she is able to asked the teacher for what she needs.   She still have some issues with test taking and her teachers have been wonderful about giving her a quiet place alone to work on a test when she needs to.  She’s learning to deal with her ADHD in the real world.   I don’t know what the future holds for Aryn.  But I will do my best to provide her with everything she needs to do her best in what ever she decides.